|BREO ELLIPTA - New FDA COPD Maintenance Drug
for COPD is now available
It's a matter of breath and death!
COPD IS NOW THE THIRD MAJOR CAUSE OF DEATH IN THE UNITED
STATES, 12 YEARS AHEAD OF PREDICTIONS. THERE WERE 141,075 DEATHS
IN 2008, ACCORDING TO THE LATEST REPORT BY THE CENTERS FOR DISEASE
"COPD is a disease characterized by a progressive airflow limitations
caused by an abnormal inflammatory reaction to the chronic inhalation
of particles. (...) From a review of data from all over the world, it is
clear that tobacco is not the only cause of COPD."
(Chest, 117/2/Feb. 2000 Supplement)
"Although COPD is a leading cause of illness and death, its recognition
as a public health problem has been slow to evolve despite the rising
mortality rate for COPD and the decline in death rates for most of the
cardiovascular diseases. For example, between 1966 and 1995, the
age-adjusted death rates for coronary heart disease and stroke
declined by 45% and 58%, respectively, whereas the death rate for
COPD increased by 71%!" (Chest, 117/2/Feb. 2000 Supplement)
"COPD is a major and increasing health problem, which is predicted
to become the third commonest cause of death and the fifth commonest
cause of disability in the world by 2020. While there have been major
advances in the understanding and management of asthma, COPD has
been relatively neglected and there are no current therapies that reduce
the inevitable progression of this disease. However, because of the
enormous burden of disease and escalating healthcare costs, there is
now renewed interest in the underlying cellular and molecular
mechanisms and a search for new therapies, resulting in re-evaluation
of the disease. Despite its enormous global importance, there has been
relatively little research into COPD and it is the most underfunded
disease in relation to the global burden of disease." (N Engl J Med
"....data from....US study suggest that 10% of persons with COPD account
for > 70% of all medical care costs. International studies of trends in
COPD-related hospitalization indicate that (...) admissions per 1,000
persons per year for COPD have increased in all age groups > 45
years of age. These trends reflect population aging, smoking patterns,
institutional factors, and treatment practices." (Chest, 2000; 112:5S-9S)
While the death rate for COPD continues to climb (141,075 in 2008),
the funding for research Is meager each year. SEE LATEST STATISTICS
The tremendous underfunding of COPD research has a very negative
impact on the development of new COPD drugs. See the 2010
PhaRMA comparative statistics here.
The Global Obstructive Lung Disease Initiative, initiated by the National
Heart, Lung, and Blood Institute and the World Health Organization, aims
to raise awareness of the increasing burden of COPD, decrease
morbidity and mortality, promote further study of the condition, and
implement programs to prevent COPD. It is your responsibility as a
citizen and a patient - if you happen to be one - to demand that the
governments and legislative bodies worldwide launch a massive
campaign to find effective treatment and possibly cure for this
debilitating and deadly disease. You owe it to yourself and to the future
A NEW BOOK BY DR. TOM PETTY IN COLLABORATION WITH
PULMONARY EXPERTS AND COPD PATIENTS
-- ADVENTURES OF AN OXY-PHILE 2 --
IS AVAILABLE FREE FOR DOWNLOADING AS TEXT (PDF) AND
INFORMATION ABOUT PORTABLE OXYGEN EQUIPMENT
(portables and POC) here
GUIDE ON TRAVEL WITH OXYGEN
LONG-TERM OXYGEN THERAPY (LTOT)
OXIMETER POCKET REFERENCE 2010
SMART NASAL CANNULA WITH A BUILT-IN FLOW METER.
CHECK THE VIDEO PRESENTATION.
OUR WEBSITE HAS BEEN RATED AMONG THE BEST IN TWO
CATEGORIES BY THE AMERICAN THORACIC SOCIETY.
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Updated July 8, 2015
OUR MEMBER IN ALA
COLORADO "RUN THE
REGISTER" Click here
BELOW MIKE McBRIDE
ON OXYGEN. SEE HIS RUN
AT THE BOSTON MARATHON
IN APRIL 2009. HERE
MEDICARE GUIDANCE ON OXYGEN!!!
CMS guidance overview here.
SERIOUS PROBLEMS FOR OXYGEN USERS NOTED here.
Contact your congressman and senators!
COPD PATIENT AND ADVOCACY COMMUNITY LOST CHIP GATCHELL
The COPD Foundation announced about his passing on June 1, 2015, in New
Hampshire. "A legend in the world of COPD, Chip was fairly well known long
before being diagnosed with COPD. His work as an engraver and artesian, Chip
was instrumental in the creation of such monuments as the Boston Athletic
Association Marathon’s medallion Boston as well as the Vietnam Memorial in
Rochester, New York.
Shortly after being diagnosed and no longer able to pursue his work as an
engraver, Chip turned his talents to web design. Chip became a co-founder of
COPD International, and at a time when “chat rooms and list serves” were still
in their infancy, Chip designed and managed the COPD International website."
- See more on the COPD Foundation.org. Chip was an active member of COPD-
ALERT since 2007. He established the Information Line at the COPD
Foundation and was on the Foundation's Board of Directors and on the
Advisory Editorial Board of the COPD Digest.
We will miss him very much.